I had to go pick up Faith from school early today. She was swinging on a swing on her tummy (which she loves) and it broke. Poor girl fell down and got her head scraped up a bit. She's probably gonna be alright before she's married 3 or 4 times (that was always my Mom's saying, it cracked me up). She was a bit whiny after that, so they called me to see what I wanted to do. I went up there to check on her and she was ready to go home. Boy trying to clean up the scrapes tonight wasn't easy at all. I mean, she doesn't like for anyone/anything to touch her face then combine that with some "hurts" on her little face. It had to be incredibly uncomfortable. I'd rather her be a bit uncomfortable at the moment than have some kinda infection 'cause it didn't get cleaned up. Her old aid left which is super sad, but the new lady is very nice too. She seems to enjoy the kids and care about them quite a lot.
I've been working out on our Bowflex for a couple of months now, and took up running about three weeks ago. About a week or so ago my Dad started running with me. I still can't run very far, but like they say "no matter how slow you go, you're lapping everybody on the couch." It's a little bit of a big deal for me as I have incredibly flat feet, to the point that when my foot is placed down on the floor there is no space whatsoever between my foot and the floor. I would say it's a "fallen arch", but I never had one to fall. Anyway, right now it's not too bad as long as I run every other day, but tomorrow my Dad and I are gonna go to shoe store that measures your feet and arches and things to figure out what shoe (and probably inserts) would be best for me to wear. Maybe I can try to do a little more with the proper kinda shoes. We will see. Also the #'s o n the scale have not went down and I don't feel any smaller really. Maybe in another month or two. I just know at the moment my goal is to get to 3miles without feeling like I'm gonna die.
Angelus is still being awesome. It's kinda a neat thing to watch as he is my son, but he is such a little "mother hen". Sometimes that annoys me, but other times I'm incredibly grateful for it. If it's a little boy what would you call it besides a "mother hen"?
Monday, October 29, 2012
Saturday, October 20, 2012
Questions or Answers?
Somethings with our littlest one just weren't adding up so we needed more answers. Her therapist were in agreement that she should've progressed further than what she has since she's been in early intervention services for over two years. So, we're looking to see if there is anything else going on with our little one.
Recently we took Faith in to the Geneticist. He was very kind and I felt listened to and not talked down to. All things that are very important. He did say that we needed to get Faith into see a pediatric neurologist and referred us to one that he works closely with. When Faith was a couple of months old I took her to the doctor and asked about her shaking so much when she slept....'cause it was A LOT. The doctor at the time, thought it was probably nothing. Anyway, over the years she has had a tendency to occasionally shake in her sleep to a much lesser degree than when she was little and sometimes she doesn't do it for months at a time. The geneticist thought she should probably at least be evaluated for seizures.
We sent off for three genetic tests and two metabolic tests.
They are doing a thing called a Comparative genome hybridization (array CGH) I'm not really sure what that means, only the doctor said they tend to get the most info off of that.
Then they are also doing DNA Analysis for Fragile X syndrome a
Metabolic Screen for :Serum lactic acid and ammonia, plasma and urine amino acids, urine organic acids, acylcarnitine profile, urine mucopolysaccharide screen and the MECP2 gene sequencing (that's where Rett's Syndrome is found). He highly recommended that I take her to a pediatric neurologist because she does shake in her sleep and he thought that having her evaluated for seizures was the thing to do.
So frustrating as I'd asked her first doctor about this back when she was 2mos old and the doctor then just said "that's just her neurons connecting". Oh well, at least I'm getting LOTS of wonderful professionals that are working with me, are kind listening and I don't ever feel like I'm being talked down to. Some (lots) of it is still super foreign to me.
We go back December 19th to find out "answers". Our main goal is to rule out these things. The geneticist said they generally find something 20% of the time and if they use the 3tiered system about 45-50% of the time. I told him my biggest concerns were to rule out things. So, no matter what [for us] we will have an answer.
Parent/Teacher conference with Angelus' teacher went good. He seemed to visit with her just fine (which probably wasn't the case at the beginning of the school year) and I found a key piece of information that may be seriously messing with his Math grade. They do it at the end of the school day. When Angelus gets home from school, he has to have everytyhing turned off in the house or he gets easily distracted. By everything...I mean ALL of the televisions (doesn't matter what room they're in), all the fans, anything on the table has to be removed. There can be no extra noise or "stuff" within reach or eye sight. I wonder if he'd do better on the Math if he didn't have a whole day of distractions to fill up his head. :) They're also now timing his reading. The teacher said average for her class was about 91, he scored 167 on his last one. I am not kidding (at all, sadly) when I say he reads as well or better than I do.
Recently we took Faith in to the Geneticist. He was very kind and I felt listened to and not talked down to. All things that are very important. He did say that we needed to get Faith into see a pediatric neurologist and referred us to one that he works closely with. When Faith was a couple of months old I took her to the doctor and asked about her shaking so much when she slept....'cause it was A LOT. The doctor at the time, thought it was probably nothing. Anyway, over the years she has had a tendency to occasionally shake in her sleep to a much lesser degree than when she was little and sometimes she doesn't do it for months at a time. The geneticist thought she should probably at least be evaluated for seizures.
We sent off for three genetic tests and two metabolic tests.
They are doing a thing called a Comparative genome hybridization (array CGH) I'm not really sure what that means, only the doctor said they tend to get the most info off of that.
Then they are also doing DNA Analysis for Fragile X syndrome a
Metabolic Screen for :Serum lactic acid and ammonia, plasma and urine amino acids, urine organic acids, acylcarnitine profile, urine mucopolysaccharide screen and the MECP2 gene sequencing (that's where Rett's Syndrome is found). He highly recommended that I take her to a pediatric neurologist because she does shake in her sleep and he thought that having her evaluated for seizures was the thing to do.
So frustrating as I'd asked her first doctor about this back when she was 2mos old and the doctor then just said "that's just her neurons connecting". Oh well, at least I'm getting LOTS of wonderful professionals that are working with me, are kind listening and I don't ever feel like I'm being talked down to. Some (lots) of it is still super foreign to me.
We go back December 19th to find out "answers". Our main goal is to rule out these things. The geneticist said they generally find something 20% of the time and if they use the 3tiered system about 45-50% of the time. I told him my biggest concerns were to rule out things. So, no matter what [for us] we will have an answer.
Parent/Teacher conference with Angelus' teacher went good. He seemed to visit with her just fine (which probably wasn't the case at the beginning of the school year) and I found a key piece of information that may be seriously messing with his Math grade. They do it at the end of the school day. When Angelus gets home from school, he has to have everytyhing turned off in the house or he gets easily distracted. By everything...I mean ALL of the televisions (doesn't matter what room they're in), all the fans, anything on the table has to be removed. There can be no extra noise or "stuff" within reach or eye sight. I wonder if he'd do better on the Math if he didn't have a whole day of distractions to fill up his head. :) They're also now timing his reading. The teacher said average for her class was about 91, he scored 167 on his last one. I am not kidding (at all, sadly) when I say he reads as well or better than I do.
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